Triggers survey



Triggers survey

Note: As of August 2001, we are NOT accepting new surveys. Therefore the submit button has been removed. The survey questions remain online so visitors can read and compare them with the survey results pages. Surveys are only for patients with biochemical confirmation of CPT II deficiency. Diagnosis is confirmed by enzymatic analysis of muscle tissue or cultured skin fibroblasts, or by mutation analysis. Incomplete surveys will not be tabulated. For the purposes of this survey, a major episode is defined as creatine kinase (CK) in excess of 1,000 and/or the presence of dark urine. If you have not experienced major episodes, omit questions #1, #8 and #9.

1. Which factors play a role in triggering major episodes of muscle symptoms?
     exercise
     sleep deprivation
     calorie restriction
     general anesthesia
     viral or bacterial infection
     exposure to cold temperatures
     low carbohydrate intake
     dehydration
     fasting
     eating fatty foods
     onset of menses

2. Which factors play a role in triggering relatively minor muscle symptoms?
     exercise
     sleep deprivation
     calorie restriction
     general anesthesia
     viral or bacterial infection
     exposure to cold temperatures
     low carbohydrate intake
     dehydration
     fasting
     eating fatty foods
     onset of menses

3. List any additional factors you have observed as triggers for muscle symptoms.



4. Which single trigger is most likely to cause muscle symptoms?


5. Estimate the number of episodes of muscle symptoms caused by a single trigger.


6. Estimate the number of episodes of muscle symptoms caused by multiple triggers.


7. Estimate the number of episodes of muscle symptoms that had no obvious trigger.


8. How many major episodes have you experienced since the onset of symptoms?



9. Have you had any major episodes that left some permanent residual symptoms?
     yes   no

     If yes, which triggers were involved?


10. I am male female    Age: under 20   21-30 30+

     I have had symptoms for years.


Comments:

Read the current Triggers survey results.