Pain survey

Pain survey

Note: As of August 2001, we are NOT accepting new surveys. Therefore the submit button has been removed. The survey questions remain online so visitors can read and compare them with the survey results pages.

Surveys are only for patients with biochemical confirmation of CPT II deficiency. Diagnosis is confirmed by enzymatic analysis of muscle tissue or cultured skin fibroblasts, or by mutation screening. Incomplete surveys will not be tabulated.

1. Indicate the types of muscle pain you experience during attacks of muscle breakdown:
     soreness
     tenderness to the touch
     aching
     burning
     cramps
     stiffness
     bruising
     swelling

Other description of pain:


2. Which type of muscle pain is most prominent during a typical attack?


3. On average, how long does your pain persist after an attack of muscle breakdown?
     Number of hours
     Number of days
     Number of weeks

4. Does the length of time you have pain correlate with the level of creatine kinase (CK) in blood?
     Yes, pain usually lasts longer when CK levels are higher.
       No, pain does not necessarily last longer when CK levels are higher.
       Not sure.

5. Does your level of pain correlate with the level of CK?
      Yes, pain is usually more severe when CK levels are higher.
      No, pain is not necessarily more severe when CK levels are higher.
      Not sure.

6. Rate the severity of pain during your worst attacks of muscle breakdown.
    (0 = no pain   10 = worst pain humanly possible)

    1   2   3   4   5   6   7   8   9   10


7. Rate the severity of pain during your mildest attacks of muscle breakdown.
    (0 = no pain   10 = worst pain humanly possible)

    1   2   3   4   5   6   7   8   9   10

8. Do you have attacks of muscle pain in which creatine kinase (CK) levels remain normal?      yes   no

If yes, how would you compare the pain of the two different kinds of episodes?
     Pain is more severe when CK levels are elevated.
      Pain is more severe when CK levels remain normal.
      Pain is similar in both cases.

9. Do you take medication to control pain during attacks of muscle breakdown?
     yes   no

If yes, which medication?


10. Do you use other methods of controlling pain during attacks?
     yes   no

If yes, what do you do to relieve pain?