Lifestyle survey Note: As of August 2001, we are NOT accepting new surveys. Therefore the submit button has been removed. The survey questions remain online so visitors can read and compare them with the survey results pages. Surveys are only for patients with biochemical confirmation of CPT II deficiency. Diagnosis is confirmed by enzymatic analysis of muscle tissue or cultured skin fibroblasts, or by mutation screening. Incomplete surveys will not be tabulated.   1.  Do you feel the symptoms of CPT II deficiency are:      predictable?      somewhat unpredictable?      very unpredictable? 2.  Have your symptoms:      stayed the same over time?      improved over time?      become worse over time? 3.  Does CPT II deficiency ever cause you to miss work or school?      occasionally?      frequently?      never? 4.  Does CPT II deficiency curtail your social life?      occasionally?      frequently?      never? 5.  How often does your family assume responsibility for things you would normally do?      occasionally?      frequently?      never? 6.  Does the cost of your medical care restrict your lifestyle?      yes   no  7.  Does CPT II deficiency affect your ability to:       --hold a job? yes   no        --shop?        yes   no       --drive?        yes   no       --travel?       yes   no  8.  Have you changed your occupation because of CPT II deficiency?      yes   no  9.  Have you moved to another climate because of CPT II deficiency?      yes   no  10. How often do you participate in sports?       occasionally?       frequently?       never?  11. What sports are you involved in?      12. What sports have you discontinued because of CPT II deficiency?      13. Comments:                   Read the current Lifestyle survey results.
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